birdman of New England

birdman of New England
the "thermals" warmed me

Sunday, June 16, 2013

A Learning Curve


The Five Rings

Of Special

 

An inability to perform tasks often demands attention.  The human instinct to make that inability ability.   However, one should never rely on compassion.   People will either bend over backwards to help, they’ll ignore you and act uncomfortable, or your inability becomes an object for their mockery. 

The first is what I most often find from educated adults and children.  They have nothing to gain.  There are no monetary or psychological profits that would come from helping.  Suppose this were the case.   It’s usually not, and there is an unavoidable pat on the back on the table.  However, occasionally the ego is secure and its stroking can be left untouched.   Embrace that Samaritan.  There’s one in every group of ten. 

The next is a shifty bunch.  Spines disappear with the wave of a cane or crutch.  They leave a crack open enough to smell the smoke of their burning need to do good a deed.   But they also have an exit strategy in case they choke on their own condescension.  I’ve seen it on cruise ships from passengers and crew alike.   I’ve also seen it from bouncers in low-end bars who stare with dour, evasively straight faces.  Both want to help, they mean you no harm.  They just can’t cognate the difference; they can’t get past the disability.  It is their job in either case to “help” you out if humanly possible.  A disability just wasn’t in their training.  They’re helpless and really have no clue, but they are trying as they think any humane person ought to do.

The last group is usually the youngest.   They are the troubled souls that kindly escorted me through junior high school.  Compassion fears to enter their minds.  I’d like to think that group has grown smaller since then.   Total ignorance remains still though, from people of any age.  Not necessarily malicious, but simple blatant refusal to realize someone might have special needs.

 



 

I fear the repeated use of special word can condition someone to think they are above the rest.  Over years, being termed special due to a disability can make someone they think they are entitled to more than others.  I’ve seen it happen.  Maybe they are entitled to more?   All I am saying is the disabled individual should not be taught to count on special treatment.  If it’s there, fine, take it.   The seven-letter word has become the fuel for stereotypes.  It is what makes the second and third group act at all.  It’s what causes nerves and ignorance.  The mind game festers; it’s emboldened and reiterated each time a parking permit is used with questionable need.  That’s just how it is; all because of one word.

Michael Phelps was ADD, and he became the most decorated Olympian.  He did that competing in The Olympics, no Para.  My guess is that no one ever called him special.  Granted, Attention Deficit Disorder is common and not usually a greatly handicapping condition.  Still, it can be nurtured like any handicap and end up making a person dependent and greatly diminish their drive to pursue what makes them happy.

The “_ _ _ _ _ _ _” Olympics make me crazy.    I get the image of the Down’s syndrome athlete being told he’s special.   He’s clutching his medal with genuine tears in his eyes with the vague notion that he’s part of something, well…special.   The name of the event is subliminal.   To me it is sad and degrading.   Those athletes deserve no more or less recognition than Kerri Strug (the gymnast who vaulted with an injured ankle in the 1996 Olympic Games).  Do these athletes really require any more nurturing; a perennial motivator to grow up strong and confident, if not also dependent?  Athletes are athletes.   I don’t think a word that overtly distinguishes them from other athletes should be hung around their neck. 

The Paralympics, I can live with that.  It comes from the Greek (the ones who gave us the games) meaning “around.”  Around the Olympics; that is an avenue we had to enter.  It is unbiased and does not put the player on a higher field.  The name does not convey any sympathy.  It simply gives greatly handicapped athletes a chance to compete with athletes who share handicaps of that degree.

For about five years I competed with the ABA (Armature Bodybuilding Association).  In all those years I never heard special.  I competed in a division for “physically challenged” athletes.  I had no issue with this.   The name stated the facts; no sugar coating.  Some had CP (cerebral palsy), one competitor was and amputee, I had ataxia (a neuro-muscular condition).  I remember one guy was blind.  Any significant “challenge” that made preparing for competition harder put us in this division.  Before I knew about the ABA I competed for five years with the NPC (National Physique Committee.  There were no “physically challenged” divisions then and I shared the stage with bodybuilders who were not challenged by anything.
 
                                           

Special is just a word though.   Children simply have needs; some are less simple than others.  In 1974 I went back into my city’s public school after a two-year hiatus.  I had been going to Michael Dowling School in Minneapolis after a traumatic head injury.   The MVA (motor vehicle accident) interrupted my kindergarten year in Richfield’s public school.  My classmates at Dowling had physical and/or cognitive inabilities, in many cases much more severe than mine.  I went back to my school in a new program called mainstreaming.   I could not write well or quickly.  “Adapt to his needs and get a typewriter for him.”  It doesn’t seem like a lot to ask, but I remember teachers who just wouldn’t budge.  The IEP (individual education plan) created mountains of paperwork for the special education teacher.  Schools didn’t roll well with the punches thirty-nine years ago.  Coming from Dowling back to the public schools was anything but a smooth transition.  I was ready for them; they were not ready for me.  Many conferences went on in my behalf between my parents, social workers, teachers, and doctors.  After one such meeting my doctor said “mainstreaming in alright if you don’t drown.”   Well, thirty-nine years later as a college graduate, I obviously did not drown.  I did come close though.  In some respects I, along with my parents and doctors, might have taught them (the teachers) as much as they taught me.

Special is as special needs. Today Dowling is called Michael Dowling Urban Environmental School.  The type of school I went to no longer exists.  Dowling was founded in Minneapolis in 1924 for children with disabilities.  Many of those kids learned to swim in the pool dedicated by Franklin Roosevelt in 1937.  There is no separation anymore.  Distinctions in levels of learning are ascertained and adaptations are made; from a computer in the room to a private instructor.    The “art” of education, continues to be a learning process for all involved.   The tactical responsibilities fall on the teachers, the parents, and the students.  There’s a balance of nature and nurture.  The factual nature of a student’s disability can’t be nurtured more or less than is necessary.   Ideally the advantage of the needier student should not be greater or less than that of the rest of the class.

Words resonate more loudly to some.  Some words carry stigmata.  Their connotations are positive or negative depending on who hears them.  I remember when the word crippled preceded children in Shriner’s Hospitals.  I was outraged as I’m sure were many of my peers from Dowling.  That word eventually fell back into the archaic bag of wisdom from which it came.   Special does not come close in its debilitating value, but it is a close second.  Perhaps in ten years special education might be termed something like “education plus” like Google plus.   Or we might cop a title from Monty Python and call the Special Olympics “the secret athletes other Olympics.”

 

MBMoshe LLC

©2012